Tag Archives: disability

Satisfied Saturday Six

The SSS celebrates six things that have gone well, or at least okay, in the past week. It is the creation of Terry Egan, who is all things wonderful.

  1. I got a goodly chunk of The Sisterhood written this week (yes, this is a reoccurring theme at the moment, but such is life). The end is still not yet nigh, but I’m quite pleased with the book nonetheless.

2. In other work-related news, albeit of a different type, Sowley of Canterbury have agreed to take some of my hand-knitted scarves. So if you’re in the market for beautiful fuzzy knitwear, I can only suggest you go there..!

3. And to plough a third vein of work (back to writing again, though), I’ve been talking with Scope about their ‘End The Awkward’ A-Z look at disability and sexuality for their ‘N’ (NSFW) section about erotica. Which is quite fun. ‘N’ isn’t out yet, but I believe it’s not too far away.

4. I had an excellent and unexpected trip to see my sister and nephew this week, which was splendid! Lots of talking and laughing and drinking  🙂

5. And talking about going away, Splendid Child is going on a school residential trip for a couple of nights soon, and Lovely Partner and I have just organised to go away by ourselves for a couple of days to Bath. I can hunt Jane Austen connections down to my heart’s content!

6. Last Sunday, Splendid Child and I took an exciting trip to London to watch Charlton Athletic football team. It was quite an adventure, including getting a bus to (close to) the ground, and then trying to find where we were going. SC did a splendid job pushing my wheelchair, and got bonus heroic points for that – and we discovered that our seats were right near the pitch (indeed, my wheelchair stopped a couple of balls that came flying off the pitch at various times) and practically next to the Home Team’s dugout! It looked like it was all going to end in disappointment for our team, as they were 2:0 down with 10 minutes to go, but incredibly, they managed to get something out of it and ended up with a last gasp equaliser for a 2:2 draw. Looking forward to the next game we can attend (24th October)…

Satisfied Saturday Six

The SSS celebrates six things that have gone well, or at least okay, in the past week. It is the creation of Terry Egan, who is all things wonderful.

1. This Thursday, I got to meet a very old friend whom I had never met in person before. We’ve been friends for over 15 years online, but as she lives in Alaska and I in the UK, trying to meet up has not been realistically. By chance, however, she was around locally just for one day – and I got to go and actually meet up! Fabulous.

2. I have finished the first draft of my article on toilet habits in the Regency Period. Not something I’d ever researched before, but it was strangely fascinating. And once again reminded me that I’m glad to live in a world of flushing toilets.

3. The sekrit project I mentioned last week is going from strength to strength and should hopefully be officially launched this week. Look out for a Huff Post story about it, as well as me going on about it all over Facebook and Twitter…

4. I ordered various things online recently, and they have been drifting through the post. Even when it’s something like a feather duster, or a maths book, it’s somehow still quite exciting to get parcels through the door! (And yes, I had ordered both of those things. Welcome to my world!)

5. Having damaged my back rather nastily a week ago, it’s feeling much better now. I had a few days of swearing and taking painkillers in large doses, and it has slowly been recovering so that now it’s not too bad as long as I don’t make any sudden twisty motions. (Or knit. Annoyingly, there is apparently a ‘knitting’ muscle in one’s back.)

6. I’ve been trying to lose weight for a while, and it’s finally beginning to pay off. I noticed in a recent photograph of myself that I didn’t look quite so enormous. As I’m unable to exercise, it’s really quite a challenge, so I’m quite proud of having managed to lose a bit.

Friday Fiction

So, my latest blog for the Huffington Post is up, in which I’m talking about a subject which can get many people up in arms (just read the comments if you don’t believe me) – disabled parking spots.

Why Parking in a Disabled Spot Without a Badge Is Never Okay

Disabled parking spaces are a hot button trigger for a lot of people. Disabled people getting really frustrated, and able-bodied people finding it difficult to understand why blue badge (‘disabled permit/placard’) holders are getting quite so irate about a minor parking infringement.

So let’s have a look at things. Here are the usual reasons people give for parking illegally in a disabled parking spot, and a quick explanation of why it’s just not okay.

Satisfied Saturday Six

The SSS celebrates six things that have gone well, or at least okay, in the past week. It is the creation of Terry Egan, who is all things wonderful.

1.  Article on the Regency written and submitted – for a sneak peek, click here.

2. A couple of people I’ve proof-read for are happy to give me a reference if anyone contacts them, which may  be very useful.

3. I’m so delighted for the USA that the judgement on equal marriage has gone through. I know there are plenty of other battles to fight, both here, there and elsewhere, but a step in the right direction is worth celebrating.

4. This being so, perhaps I should also celebrate the fact that my son’s school are finally beginning to acknowledge that it’s inappropriate to park their minibus in the disabled parking spot. A new teacher demanded I move from it (I am a blue badge holder, for the record!) so that they could park the bus there, but after a somewhat heated debate, I did get an apology.

5. And talking of my son, he’s taking part in a football tournament today, about which he is very excited. Some very kind friends have also volunteered to take him and bring him home, which means that when I’ve finished writing this, I’m off for a sleep!

6. I’m beginning to get plans for the summer holidays sorted. There will hopefully be a lot of things going on, including seeing lovely friends and family and spending time in my favourite place, Cornwall.

Friday Fiction (Disability)

So, I wrote my first piece for the Huffington Post blog today, so I think that really has to be today’s FF.

I Get By With a Little Help From My Friends

Hello, I’m Penelope Friday. I am a disabled mother: I’ve had a diagnosis of moderate to severe ME/CFS for 22 years, and a diagnosis of fibromyalgia for 1 day (yes, really. No thank you, in the nicest possible way, I don’t want to know what you advise for either of them). I have a very wonderful son of nine, but when he was a pre-schooler, I had a horrendous amount of trouble getting him to pre-school. I have been reminded of this recently because my car – fairly vital when you can barely walk – has unfortunately gone the way of all things mechanical. And I’m back to relying on… well, that little (or, in my case, big) bit of help from my friends.

Read more

Satisfied Saturday Six

The SSS celebrates six things that have gone well, or at least okay, in the past week. It is the creation of Terry Egan, who is all things wonderful.

 

1. I am slightly embarrassed to mention it again, but my novel Petticoats and Promises came out this week. I know, I know, I need to shut up about it. But squee! Novel! Exciting! Yay!

 

2. My lovely sister has been visiting over half-term, and it’s been excellent to spend time with her in person rather than hours on the phone (also good, but actual!real!sister wins).

 

3. AND I saw my gorgeous niece and her boyfriend on Monday, which was also excellent.

 

4. It was confirmed that I’ve been re-awarded disability benefits. As my Satisfied Saturday Six has been over-full of medical appointments over the last months (yes, I did have one this week – but there are NONE next week!), you may possibly have gathered that my health is not precisely the best. I appear to have started doing the SSS at a particularly difficult point in my life, which probably makes it more worthwhile for me, but a bit tedious for readers. Sorry about that!

 

5. It is half-term from school, which means that Child has been around more than usual. He is good value, and also had an excellent time on Wednesday on a day course which covered archery, falconry and bushcraft. I am somewhat jealous!

 

6. Talking of Wednesday, I also went out for a meal with my family that day. Mmm, steak. Mmm, red wine. Delicious.

Friday Fiction (Article)

Questions of Identity… Coming out as disabled

Having to “come out”. Being called “abnormal”. Or described as “queer”. All of these phrases are regularly used as descriptions of non-straight sexualities, yet they work equally well as definitions of disability.But what is it like “coming out” in two different ways – being disabled and gay/lesbian/ bi/pansexual? And which is the most difficult for others to acknowledge? (Please click text for more.)